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Aging and End of Life
• Caring Conversations, helping families make practical preparations for serious illness or the end of life
• Caring Conversations for Young Adults, a way for young adults to make their medical wishes known for when they can no longer speak for themselves
• Coalition to Transform Advance Care, a national consortium working to produce a system that provides quality care consistent with the patient’s goals and values.
• Community-State Partnerships to Improve End-of-Life Care, an $11.25 million Robert Wood Johnson National Program
• Compassion Sabbath, a public outreach/community education effort involving faith communities to improve the care of seriously ill and dying people
• KC4 Aging in Community, preparing today for tomorrow’s aging Kansas City
• Nancy Beth Cruzan vs. Director, Missouri Dept. of Health, counseled both sides in the first “right to die” case to be reviewed by the U.S. Supreme Court
• Patient Self-Determination Act: consulted with former US Senator John Danforth (MO) to develop this landmark legislation
• Rallying Points, a national program funded by the Robert Wood Johnson Foundation
• Transportable Physician Orders for Patient Preferences, ensuring your loved one’s treatment wishes are honored as they move from one care setting to another
• National Association of Attorneys’ General End of Life Health Care Project to frame end-of-life as a consumer protection issue
The Center and Pain Policy
• The Balanced Pain Policy Initiative – research into physician prosecutions for improperly prescribing opioids, law enforcement policy brief for pain investigations
• Pain Action Initiative – A National Strategy (PAINS)
• Research on pain contracts
Clinical and Organizational Ethics
• Kansas City Regional Hospital Ethics Committee Consortium
• Consortium guidelines
• Ethics workshops twice a year
• Online ethics education – Certificate in Clinical Education offered starting fall of 2010
• Patient rights and organizational ethics standards with Joint Commission on the Accreditation of Healthcare Organizations
Life Science Research Ethics
• The Center and Stem Cell Research
• Protection of Research Subjects with Diminished Capacity
Disparities in Health and Healthcare
• Consulted with early leadership in development of the Tuskegee University National Center for Bioethics in Research and Health Care (1999 to 2000)
• Northland Care/MetroCARE, a program matching medical specialists with underserved communities
• Sabbaths of Hope, enabling clergy and other faith leaders to recognize types and symptoms of depression and offer more effective support to congregants suffering from depression.
• Healthcare Narratives for Diverse Communities, a self-assessment tool for healthcare providers
Lectures
• Flanigan Lecture, annual program addressing important issues in bioethics, named in honor of Sister Rosemary Flanigan, a program associate at the Center from 1992 to 2010
• Cockefair Lecture, annual program in collaboration with the University of Missouri-Kansas City
• 25th Anniversary Lecture Series, 2009
• Bioethics Symposium 2009
• Genetics, Jewish Diseases & Personalized Medicine
• Healthcare Reform 2009: Truth, Justice and the American Way
Publications
• Host editorial offices for The American Journal of Bioethics and its family of publications – AJOB Primary Research and AJOB Neuroscience. (2010 to present)
• Practical Bioethics quarterly
• State Initiatives in End of Li fe Care series
• Bioethics Forum
Recognition
Marian Gray Secundy Sankofa Award recognizing the Center’s work to improve palliative care for African Americans
Media
Hosted the first televised (PBS) And Thou Shalt Honor Town Hall Meeting in a national series focused on family caregivers (2003).
Served as an advisor on Bill Moyer’s documentary series On Our Own Terms (1999-2001).
Program viewed by more than 20 million – largest viewing audience in PBS history.
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