Genetics, Jewish Diseases & Personalized Medicine

Advances in genetics change the way we think about health, disease, and personal identity. On November 2 and 3, 2009, the Center for Practical Bioethics and Children’s Mercy Hospitals and Clinics sponsored a conference bringing together prominent panelists who discussed the ethical implications of new discoveries in genetics.

Audio from lectures and You Tube interviews are available below.

Our thanks to The Barton P. and Mary D. Cohen Charitable Trust and Children’s Mercy Hospital and Clinics for their support of this program.

Links to presentations and Q & A:

Genetic Testing and Jewish Identity - Do our genes tell us who we are?

Links:

Tay-Sachs and Sickle Cell - Different cultures, different responses to genetic testing

Keith Wailoo - Rutgers University - Sociologist

Recreational Genetic Testing: Navigating Personal Identity in a Genomic Age

Barbara Koenig - Mayo College of Medicine- Anthropologist

Genetic testing from a traditional Jewish perspective - can testing before marriage help?

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What does it mean to be told that you (or your child) has a bad gene?

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Personalized Medicine and the cost of health care. Will individualized diagnosis and treatment raise costs, improve quality, or become a boutique commodity?

Noam Zohar - Bar Ilan University, Israel - Rabbi and Philosopher
Stephen Spielberg- Children's Mercy Hospital Pharmacogeneticist

Links:

Why do bad genes persist?

Henry Harpending - University of Utah - Anthropologist
Alan Redd - University of Kansas- Anthropologist

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Can we redesign ourselves? If so, would we do it well? Thoughts of a genetics consumer.

David Ewing Duncan- Journalist and Bioethicist

Eugenics, arranged marriages, and gene therapy: Responses to genetic disease

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Individuals, culture and biology: what does the future hold?

Laurie Zoloth - Northwestern University - Bioethicist
John Lantos- Children's Mercy Hospital - Pediatrician

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Links to You Tube Interviews:

 

David Ewing Duncan