Kansas City Partnership to Advance Pediatric Palliative Care

The Kansas City Partnership to Advance Pediatric Palliative Care is a program designed to address the needs of seriously ill and dying children in the greater Kansas City area. The Center for Practical Bioethics serves as the lead agency in the program’s implementation.

Four major goals have been identified as the focus of the project:

Enhance professional competencies
Establish viable family resources
Give voice and choice to minors in care planning
Engage schools and public entities in policy change and regulatory compliance

Success of this project will result in a community-based model for coordinated care that addresses the clinical, social, psychological and spiritual needs of children and their families. The initiative will serve as a model-program for other communities and institutional collaborations nationwide.

Cindy Leyland serves as the project director. She can be reached at (816)221-1100 ext 209 or pedsproject@practicalbioethics.org.

This program is funded by the following:

First Hand Foundation
Ten Ten Foundation
Marjorie Sirridge
Ronald McDonald House Charities (national)
Ronald McDonald House Charities of KC
JE Dunn Construction Company
Victor E. Speas Memorial Trust
Irvine and Ellen Hockaday
Hall Family Foundation
Miller & Jeannette Nichols Foundation
DST Systems
Carolyn T. Davis, MD

Newsroom

Schools and DNAR Orders

A Do Not Attempt Resuscitation order presents unique challenges to school districts. The Center for Practical Bioethics recently reviewed the school board policies (or guidelines) addressing DNAR orders in the 51 districts comprising the eight-county Greater Kansas City area.

Remembering Haley
December 2005

Ann Jerome and her husband, Brad, already had one child, Griffin, and were anxiously anticipating the arrival of a second. Three weeks before the due date, though, things changed. A prenatal test showed something very wrong.

Letting go: Dylan's last days
Two parents face an agonizing test of faith and love for their son
Kevin Simpson
Denver Post
December 18, 2005

The public battle between the parents and husband of Terri Schiavo thrust such agonizing decisions into the headlines, but similar, uncontested end-of-life choices face thousands of Americans every day.

Walt Bodine Show
KCUR Radio
August 17, 2005

KansasPublic Radio
August 1, 2005

Center Launches Pediatric Palliative Care Initiative
January 28, 2005

Quality Domains, Goals and Indicators for Family-Centered Care of Children Living with Life-Threatening Conditions
Initiative for Pediatric Palliative Care (IPPC)
2001

Clinical Practice Guidelines for Quality Palliative Care
National Consensus Project for Quality Palliative Care
May 2004

Integrated Multi-Agency Care Pathways for Children with Life-Threatening and Life-Limiting Conditions
Association for Children with Life-Threatening or Terminal Conditions and their Families (ACT) – (United Kingdom)
December 2004

Pediatric Hospice Palliative Care – Guiding Principles and Norms of Practice
Canadian Hospice Palliative Care Association (CHPCA)
March 2004