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For a pdf copy of an edition of the publications listed below, please email bioethic@practicalbioethics.org.
Bioethics Forum
Vol. 10 (1)-Winter 1994 Ethics and Nursing
Selected Issues in Nursing Ethics: Clinical, Philosophical, Political
Anne J. Davis
Strengthening the Nurses Role as Patient Advocate
Susan Hackler Fetsch and Mary K. Mintun
Impaired Nursing Practice: Ethical, Legal and Policy Perspectives
Eleanor J. Sullivan
Nursing’s Most Pressing Moral Issue
Terry Pence
Vol. 10 (2)-Spring 1994 Physician-Assisted Suicide
The Mission Link: The Physician and Assisted Suicide
Amir Halevy
Moral Dominion Over Dying: The Case for Mercy Death
Daniel C. Maguire
Professional Integrity and Assisted Suicide: A Nursing View
Anne Young
Reaping the Whirlwind: The Dutch Experience with Euthanasia
Carlos F. Gomez
Public Policy on Physician-Assisted Suicide: Reasons for Retaining the Ban
B. Andrew Lustig
Exploring Human Suffering: Why the Reluctance?
Timothy E. Quill
Vol. 10 (3)-Summer 1994 Ethics and the Media
A Journalist’s Role in Reporting Death and Dying
Joann Byrd
Abortion, Morality, and the Murky Middle: A Challenge to the Media
Thomas C. Fox
Journalists Struggle with Three Conflicts When Covering Abortion Politics
John C. Ginn
Ethics and the Media: A View from the Other Side
Cheryl Hall Harris
The Media and the “D” Word: An Oppurtunity for Journalism and America to Mature
Edmund B. Lambeth
Fairness Versus Objectivity in Reporting on the Abortion Controversy
Carole Rich
Storytelling About AIDS: A Duty of Care
Robert M. Steele
Vol. 10 (4)-Fall 1994 Ethics Committee’s
Clinical Ethics and Ethics Committees
William G. Bartholome
Case Study: To Tube Feed or Not to Tube Feed
Case Analysis
Integrated Ethics Programs: A New Mission for Ethics Committees
Myra J. Christopher
Ethical Decision Making in Managed Care Environments
Judith Wilson Ross
Ethics Committees and Resource Allocation
John D. Lantos
Learning to “Read/Hear”: Narrative Ethics and Ethics Committee Education
Robert Lyman Potter
Consultectonics: Ethics Committee Case Consultation as Mediation
Don F. Reynolds
The Voices of Nurses on Ethics Committees
Cindy Hylton Rushton
Nurses’ Perspectives of Hospital Ethics Committees
Holly A. Stadler, John M. Morrissey, Joycelyn E. Tucker, Julie A. Paige, Jo E. McWilliams, Denise Kay, Brian Williams-Rice
Education of Ethics Committees
David C. Thomasma
The Importance of Process in Ethical Decision Making
Barbara C. Thornton
Vol 11 (1)-Spring 1995 Perinatal Ethics
Joining in Life and Death: On Separating the Lakeberg Twins
Charles J. Dougherty
Reducing Suffering and Ensuring Beneficial Outcomes for Neonates: An Ethical Perspective
Dennis Brodeur
High Risk Infants: Thirty Years of Intensive Care
Cheryl Hall Harris
Ethics and the Biology of Reproduction
David J. Harris
Informed Consent as a Parent Involvement Model in the NICU
Kleia R. Luckner and Irwin J. Weinfeld
Futile Care in Neonatology:An Interim Report from Colorado
Peter Hulac and Elizabeth Barbour
Prematernal Duty and the Resolution of Conflict
John D. Yeast
Vol 11 (2)-Summer 1995 Cultural Diversity, Ethics, and Health Care
Bioethical Issues Confronting the African American Community
Kelvin T. Calloway
Case Study
Case Commentary
Rosemary Flanigan
Modern Medicine in a Multicultural Setting
Dorothy Rasinski Gregory
Cultural Diversity in Medicine and Medical Ethics: What are the Key Questions?
John La Puma
In a Different Voice: Technology, Culture, and Post-Modern Bioethics
Douglas McNair
Puerto Rican Health Beliefs and Practices: Exploring the Boundaries between Ethnomedicine and Biomedicine
Lee M. Pachter
Where Is Will Roger When We Need Him Most? Toward a Traditional Morality in Biomedical Ethics
Tex Sample
Vol 11 (3)-Fall 1995 Future Issues in Bioethics
Case Study: More is Better
Rosemary Flanigan
Future Issues in Bioethics
Rosemary Flanigan
Phase II of Bioethics:The Turn to the Social Nature of Individuals
John W. Glaser
Commodity or Public Work? Two Perspectives on Health Care
Bruce Jennings and Mark J. Hanson
The Glare from Everywhere: A Playlet on Bioethics Aspects of Clinical Decision Support Systems
Douglas McNair
Preimplantation Embryos, Research Ethics, and Public Policy
Carol A. Tauer
Irreconcilable Conflicts in Bioethics
William J. Winslade
Vol 11 (4)-Winter 1995 Minors’ Rights in Health Care Decision Making
Hearing Children’s Voices
William G. Bartholome
Children, Society, and Health Care Decision Making
James M. Caccamo
Decision Making in Health Care: Youthful Perspectives
Claire Bartholome and Lizzie Larson
Teaching the Three Rs: Rights, Roles and Responsibilities–a curriculum for pediatric patient rights
Kathleen G.Davis
Minors and Health Care Decisions: Broadening the Scope
Joel Frader
Health Care Treatment Decision Making Guidelines for Minors
Midwest Bioethics Center Task Force on Health Care Rights for Minors
Arguments Against Health Care Autonomy for Minors
Lainie Friedman Ross
Respecting the Health Care Decision Making Capacity of Minors
Carson Strong
The Role of Minors in Health Care Decision Making: Current Legal Issues
David J. Waxse
Vol 12 (1)-Spring 1996 Managed Care
Real World Resource Allocation: The Concept of “Good Enough” Psychotherapy
James E. Sabin and Carlos Neu
Can Ethics Committees Work in Managed Care Plans?
Michael Felder
Physicians and Managed Care: Employees or Professionals?
Kate T. Christensen
Provider Disclosure of Financial Incentives in Managed Care: Pros and Cons
Robert McCormack
Personal Privacy and Confidentiality In an Electronic Environment
Ida Critelli Schick
Case Study: Ophelia
Prepared by Rosemary Flanigan
Ethical Issues in Managed Care: Guidelines for Clinicians and Recommendations to Accrediting Organizations
Joan D. Biblo, Myra J. Christopher, Linda Johnson, Robert Lyman Potter
Vol. 12 (2)-Summer 1996 Organizational Ethics
From Clinical Ethics to Organizational Ethics: The Second Stage of the Evolution of Bioethics
Robert Lyman Potter
Patient Rights and Organization Ethics: The Joint Commission Perspective
Paul M. Schyve
Do No Harm
Anthony M. Kotin
Individuals Bear Responsibility
Van Rensselaer Potter
Organizations, Ethics, and Health Care: Building an Ethics Infrastrcuture for a New Era
David O. Renz and William B. Eddy
The Evolving Health Care Marketplace: How Important Is the Patient?
Eric N. Berkowitz
Hospital Mergers and Acquisitions: A New Catalyst for Examining Organizational Ethics
Paul B. Hofmann
Vol. 12 (3)-Fall 1996 Ethical Issues in Health Care of the Developmentally Disabled
Shared Decision Making: The Ethics of Caring and Best Respect
Joseph E. Beltran
Being Human: Issues in Sexuality for people with Developmental Disabilities
Sheryl Robinson Civjan
Silences
Theodore J. Diboun
My Quality is Not Low!
Douglas McNair
A Threat To Disabled Persons? On The Genetics Approach to Developmental Disabilities
Hans S. Reinders
Russell’s Story
Don F. Reynolds
Challenges Across the Life Span For Persons with Disabilities
Christine Rinck and Carl F. Calkins
People with Developmental Disabilities Focusing on Their Own Health Care
Becky St. Clair
Health Care Treatment Decision-Making Guidelines for Adults with Developmental Disabilities
Midwest Bioethics Center and University of Missouri-Kansas City Institute for Human Development Task Force on Health Care for Adults with Developmental Disabilities
Vol. 12 (4)-Winter 1996 Ethics and Complementary Medicine
Ethics at the Interface: Conventional Western and Complementary Medical Systems
Howard Brody, Janis Rygwelski, and Michael D. Fetters
Patient Self-Determination and Complementary Therapies
Margaret A. Burkhardt and Alvita K. Nathaniel
A Case Study: Herman’s Story
Rosemary Flanigan
Guest Commentary: Ethical Issues in Alternative Medicine
David Edelberg
The Tapestry of Alternative Healing
Robert Hudson
Bioethical Analysis of an Integrated Medicine Clinic
Robert Lyman Potter and Jennifer Schneider
Vol. 13 (1)-Spring 1997 Reflections on a Good Death
What Makes a Good Death?
Shana Alexander
My Ideal Death
Nancy Pickard
A Good Death: Improving Care Inch-by-Inch
Elise Ayers, MPH, Joan Harrold, MD, Joanne Lynn, MD
STILL/HERE Above Ground
William G. Bartholome
What Makes a Good Death?
Daniel Callahan
Case Study: John
Rosemary Flanigan
The Spice Box
Myra Christopher
Reflections on a Good Death: an interview with Carl E. Flemister
A Good Death
Alice Kitchen
A Good Death — Oxymoron?
Richard A. McCormick
Struggle
Patrick Miller
An African American Looks at Death
Marian Gray Secundy
Already Broken: A Photographic Essay
Valerie Yancey (Photographs by Bruce Misfeldt)
Vol. 13 (2)-Summer 1997 Advance Care Planning
Case Study: Melinda’s Story
Rosemary Flanigan
Guest Editorial
Myra Christopher
Physician-Assisted Suicide: A Different Approach
Linda Emanuel
The Invalid Advance Directive
John FitzGerald and Neil Wenger
The Health Care Agent: Selected but Neglected
Arline Lane and Nancy Neveloff Dubler
A Practical Advance Directive Survey
Tony McCanna
Reflections on Cultural Difference and Advance Directives
Vicki Michel
Advocating for the Dying: The View of Family and Friends
Anna Moretti
Advance Directives Timeline
Beyond Living Wills
Mark Tonelli
Difficult Decisions in Health Care: One Woman’s Journey
Marcia K. Walsh
Advance Directives and Patient Rights: A Joint Commission Perspective
Patricia A. Worth-Staten and Larry Poniatowski
Vol. 13 (3)-Fall 1997 Palliative Care
Grieving the Death of a Friend
David B. Burrell
Guest Editorial: Physicians, Heroes, and Palliative Care
David Emmott
The Role of Ethics Committees in Responding to the Moral Outrage of Unrelieved Pain
Betty R. Ferrell
Garrett’s Story
Nelda S. Godfrey
An Interview with Ira Byock
Hospice Narratives of Good Dying
Ellen McGee
Palliative Care and Killing: Understanding Ethical Distinctions
Patrick F. Norris
Palliative Care: A Bioethical Definition, Principles, and Clinical Guidelines
Linda Farber Post and Nancy Neveloff Dubler
Palliative Care Education—A Growing Need
Norma Wylie
Vol. 13 (4)-Winter 1997
Psychospiritual Care: A Shared Journey Embracing Life and Wholeness
Margaret Burkhardt and Mary Gail Nagai-Jacobsen
Case Study
Rosemary Flanigan
The Box
Myra J. Christopher
A Cartography of Spirituality in End-of-Life Care
Timothy P. Daaleman
Psychospiritual Elements of Illness: Beyond Biomedicine
Clifford C. Kuhn
The Spiritual Side of Dying
Laurence K. O’Connell
Reflecting on the Death of A Friend
Jane Pitz
Spirituality, Religion, and the Physician: New Ethical Challenges in Patient Care
Gregory A. Plotnikoff
Dying in America: Contexts and Problems
Thomas A. Shannon
Ensuring a Good Death
David C. Thomasma
Vol 14 (1)-Spring 1998 Do-Not-Resuscitate
Case Study
Rosemary Flanigan
Guest Editorial: The Most Solemn Moment of My Living
Rosemary Flanigan
Viewpoints: Honesty and CPR
Robert L. Potter
Avoiding Resuscitation in Non-Hospital Settings: No Consent Forms
Don F. Reynolds and Celia K. Garrett
Advance Directives for Emergency Medical Service Workers: The Struggle Continues
Dennis Sosna
A Practical Approach to DNR Discussions
Jim Stoddard
Viewpoints: The Changing Order of Things
M. C. Sullivan
Honoring Do-Not-Resuscitate (DNR) Orders During Invasive Procedures
Kansas City Area Ethics Committee Consortium of Midwest Bioethics Center
An Alternative Policy for CPR in Nursing Homes
Steven C. Zweig
Vol. 14 (2)-Summer 1998 Treatment Redirection
A Meditation: May I Be a Cancerous Survivor?
William G. Bartholome
The Houston Process-Based Approach to Medical Futility
Amir Halevy and Baruch A. Brody
Case Study: Barney Says “No”
Robert Potter and Helen Emmott
Community Guidelines for End-of-Life Care: Incremental Change or Significant Reform?
Donald Murphy and Susan Fox Buchanan
Treatment Redirection: Moving From Curative to Palliative Care
Robert Lyman Potter
Considerations Regarding Withholding/Withdrawing Life-Sustaining Treatment
Kansas City Area Ethics Committee Consortium of Midwest Bioethics Center
Vol. 14 (3&4)-Fall/Winter 1998 Confidentiality and Privacy Issues in Health Care
Viewpoint: Ethicists Are Patients Too
Eileen Amari-Vaught
Case Study: Megan’s Diagnosis
Helen Emmott and Rosemary Flanigan
Understanding Patient Confidentiality and Health Information Tracking—An Overview
Ronald Domen
Viewpoint: Our Best Path Forward
W. Clay Jackson
The Physician’s Role in Protecting Confidentiality—A Consideration of the Implications of AIDS
Sharon Lee
The Ethics of Health Privacy—A Matter of Environmental Ethics
Douglas McNair
Youth, Health Care Decisions, and Confidentiality—A Survey Report
Sarah Norris
Confidentiality—Revealing Trends in Bioethics
Lisa S. Parker and Robert M. Arnold
Rethinking the Ethics of Confidentiality and Health Care Teams
Ruth B. Purtilo
Privacy, Security, and Shared Access—Can Confidentiality Be Protected in a Networked Society?
David Voran
Vol. 15 (1)-Spring 1999 Hope
Case Study: Is Hope a Univocal Word?
Rosemary Flanigan
My Mother’s Gift—The Link Between Honesty and Hope
Myra Christopher
“Hope” is the Thing With Feathers
Emily Dickinson
Fostering Hope in the Clinical Setting
Sibyl Downing and James Jura, Jr.
The Meaning of Hope in Health and Illness
Cheryl L. Nekolaichuk
The Physicians’s Role in Maintaining Hope and Spirituality
Thomas Warr
Viewpoint: For Dying Patients and Their Families
Jim Waun
Hope—A Necessary Virtue for Health Care
Kevin Wildes, SJ
Vol. 15 (2)-Summer 1999 Vulnerable Populations
Addressing the Health Needs of the Underserved
Ellen Beck
Case Study: What Should We Do?
Rosemary Flanigan
Viewpoint: Societal Effects of Overlooking Children—Our Most Vulnerable Population
Linda Johnson
Treating Immigrant Populations—Cultural Competence in Health Care
Alice Kitchen
Beyond Justice
Robert D. Orr
Viewpoint: Prisoners as Vulnerable Persons
Robert Lyman Potter
Project BRIDGE—People with Disabilities Participate in Their Health Care Decisions
Don F. Reynolds
Autonomy and Competency—Self-determination in the Lives of Adults with Developmental Disabilities
Tanya Whitehead
Vol. 15 (3)-Fall 1999 Long-Term Care
Hospice in the Nursing Home—A Valuable Collaboration
Ann Allegre, Barbara Frank, and Elaine McIntosh
Case Study: Pain Management—Walking the Tightrope
Linda Johnson and Robert Potter
Educational Initiatives in Long-Term Care—Midwest Bioethics Center’s Kansas Nursing Home Project
Jeremy Kenner
End-of-Life Care in the Nursing Home—Is a Good Death Compatible with Regulatory Compliance?
Larry W. Lawhorne
The Real Caregivers in the Nursing Home—Certified Nursing Assistants
David B. Oliver
Long-Term Care—Institution, Residence, Hospital, or Home?
Rachel Reeder
Medicare Propsective Payment—The Ethical Implications of Converging Clinical and Financial Decisions in Long-Term Care
Don F. Reynolds
Vol. 15 (4)-Winter 1999 PATHWAYS Report
Lessons from the Field—Health Care Experiences and Preferences in a Latino Community
Kristi Reich Bade, John Murphy, and M.C. Sullivan
Case Study: Bertha’s Last Chapter
Helen Emmott and Rosemary Flanigan
PATHWAYS to Improve End-of-Life Care—Community Approach
Myra Christopher
Caring Conversations—PATHWAYS’ Consumer/Patient Initiative
Linda Johnson
The Kansas City Palliative Care Curriculum—Medical Schools Improve End-of-Life Training
Robert Lyman Potter
Improving Care for Seriously Ill and Dying Resdients of Long-Term Care Facilities
Don Reynolds
Educating Nurse Leaders in Ethics and End-of-Life Care
Melanie Simpson
The PATHWAYS Hospital Project
M.C. Sullivan
Compassion Sabbath—Engaging Clergy and Faith Communities in Improving Spiritual Care of the Dying
JoEllen Wurth and M.C. Sullivan
Vol. 16 (1)-Spring 2000 Meditations by William G. Bartholome
Lessons from the Angel of Death
William G. Bartholome
A World Unraveling
William G. Bartholome
May I Be a Cancerous Survivor?
William G. Bartholome
Living in the Light of Death
William G. Bartholome
A Prayer
William G. Bartholome
STILL/HERE Above Ground
William G. Bartholome
Are You Still Terminal?
William G. Bartholome
Forward
Myra Christopher
Vol. 16 (2)-Reflections on Vulnerability and the Bioethics Movement
Book Review: The Right to Die Debate
Bill Colby
Case Study: Patient Vulnerability from a Systems Failure to Protect
Linda Johnson and Robert L. Potter
Listening to Stories—A Poet Speaks to Physicians
Stephen Dunn
Vulnerability and the Bioethics Movement
Rosemary Flanigan
Suffering, Cure, and Palliation—Bioethics in an Era of Diverse Idioms
Douglas McNair
The Vulnerability of the Sick
David C. Thomasma
Vulnerability and Hope
Valerie Yancey
Vol. 16 (3)-Difficult Provider-Patient Relationships
The Challenges of Cross-Cultural Healthcare—Diversity, Ethics, and the Medical Encounter
Joseph R. Betancourt, Alexander R. Green, and J. Emilio Carrillo
Case Study: The Wanted, Unwanted Doctor
David Emmot, Helen Emmott, and Robert Potter
Patient-Provider Relations—Understanding the Social and Cultural Circumstances of Difficult Patients
K. Allen Greiner
Difficult Relationships—Interactions between Family Members and Staff in Long-Term Care
Sarah Norris
Upholding Standards of Care for Difficult Patients
Anna Ojascastro
The Impatient Patient—Reexamining Difficult Patient-Provider Relationships
Marilyn Schaeffer
Guidelines for Providing Ethical Care in Difficult Provider-Patient Relationships
Midwest Bioethics Center Ethics Committee Consortium
Vol. 16 (4)-Research Ethics
Case Study: Clinical Research Involving Children
Ralph E. Kauffman
Trials with Errors—Preserving the Integrity of Clinical Trials
Ruth Levy Guyer
Protecting Human Subjects in Research—Occasional Views along a Road Less Traveled
Greg Koski
Taking the “I” Out of IRB—and Putting “Community” In
Mary Faith Marshall
Protecting the Human Subjects of Social Science Research—The Role of Institutional Review Boards
Don Reynolds
Research Misconduct—An Indictment and Possible Solution
Hans Uffelmann
Vol. 17 (1)-Cultural Diversity
Fadiman and Beyond—The Dangers of Extrapolation
Linda L. Barnes and Gregory A. Plotnikoff
Case Study: What Amy Doesn’t Know—Respect for Cultural Diversity or Bad Ethics?
Cultural Barriers to Compassionate Care—Patients’ and Health Professionals’ Perspectives
Alice H. Cornelison
Outcomes of Written Living Wills in Japan—A Survey of the Deceased Ones’ Families
Yuichiro Masuda, Michael D. Fetters, Hiroshi Shimokata, Emiko Muto, Nanaka Mogi, Akihisa Iguchi, and Kazumasa Uemura
Addressing Cultural Incongruities of Advance Directives
Dula Pacquiao
Reader’s Forum
Cultural Assessment in Bioethical Advocacy—Toward Cultural Competency in Bioethical Practice
Ramón Valle
Vol. 17 (2)-Medical Mistakes
Moral Courage in Medicine—Disclosing Medical Error
John Banja
Case Study: The Case of the Upbeat Mechanic
Robert Potter
Heartland Regional Medical Center Makes a “Fitting Response” to Medical Mistakes
Landis Downing and Robert L. Potter
Medical Errors in Surgery
David Emmott
New Standards, New Dilemmas—Reflections on Managing Medical Mistakes
Ginny M. Hamm and Steve S. Kraman
From a Culture of Blame to a Culture of Saftey—The Role of Instututional Ethics Committees
Mark Meaney
Vol. 17 (3/4)-Cultural Diversity
Viewpoint: Their Story, My Story, Our Story
Vicky Burnett
Learning from Different Cultures—A Cultural Diversity Project in End-of-Life Care
Myra Christopher and Helen Emmott
Putting a Face on Poverty—A Tale of Two Counties
Sharon Lee
Ethics and Cultural Diversity—A Framework for Decision-Making
Dula F. Pacquiao
Vulnerability and Strength—Giving Voice to the Voiceless
Dennis Saleebey
Notes from the Field—An Adventure in Multiculturalism
M.C. Sullivan
Healthcare Narratives from Diverse Communities—A Self-Assessment Tool for Healthcare Providers
Midwest Bioethics Center Staff and Members of the Cultural Diversity Task Force
The Cultural Divide between Medical Providers and Their Patients—Aligning Two World Views
Sara E. Tirrell
18(1/2)
Viewpoint: Moral Distress in Healthcare
Judith Andre
Case Studies
Robert L. Potter and Rosemary Flanigan
Moral Distress or Moral Comfort
Mary C. Corley and Ptlene Minick
In the Patient’s Best Interest—A Call to Action, A Call to Balance
Norma J. Hirsch
Moral Fatigue—A Nursing Perspective
Susan Taylor
Virtue, Foible, and Practice—Medicine’s Arduous Moral Triad
Griffin Trotter
Moral Distress—The Role of Ethics Consultation in the NICU
Lucia Wocial
18(3/4)
Communicative Competence in Pediatric Palliative Care
David Browning
Decision Making in the NICU—Strategies, Statiscitcs, and “Satisficing”
Brian S. Carter and Steven R. Leuthner
Children’s Participation in Healthcare in the UK—Gesture, Rhetoric, or Real Involvement?
Bernie Carter
Case Study:James vs. the Board of Education
Robert L. Potter
Facing Decisions about Life and Death—Communication with Parents
Marcia Levetown
Ethical Concerns Associated with Childhood Depression
Eve-Lynn Nelson
Child Assent and Parental Permission for Clinical Research—Some Considerations
Christian Simon
Confidentiality for Mental Health Concerns in Adolescent Primary Care
Larry Wissow, Kate Fothergill, and Jane Forman
19(1/2)
Viewpoint: Honoring Caregivers—A National Initiative
Dale Bell
Elder Abuse—An Ethical Dilemma for Caregivers
Linda Carter
Case Study: The Case of the Careless Caregiver
Rosemary Flanigan and Robert L. Potter
Viewpoint: Saying Goodbye—The Terri Shiavo Case
Myra Christopher
Supporting Persons with Developmental Disability—A New Model
Michael McCarthy, Michelle Reynolds, and Laura Walker
Caregiver Access to Resources—Helping Caregivers Self-Identify
Caren Rugg
Cultural Competency—The Caregiver Connection
Jacqueline J. Voigt
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