Disparities and Vulnerable Populations

 

INTERVIEWS

 

Respecting the Disabled at End of Life

Paul Tobin, president & CEO of the United Spinal Association, discusses end of life concerns of people with disabilities, ranging from access to services and supports to maximize independence to perspectives on assisted suicide.

22-Oct-10, Paul Tobin, President & CEO, United Spinal Association

 

 

CULTURAL DIVERSITY ARTICLES

 

Bioethics Forum

Cultural Diversity, Ethics & Health Care, Vol. 11(2) Summer 1995

 

 

Bioethical Issues Confronting the African American Community

Kelvin T. Calloway

 

Case Study: Empacho - Curing a Latino "Folk Illness"

Rosemary Flanigan

 

Modern Medicine in a Multicultural Setting

Dorothy Rasinski Gregory

 

Cultural Diversity in Medicine and Medical Ethics: What are the Key Questions?

Johon La Puma

 

In a Different Voice: Technology, Culture and Post-Modern Bioethics

Douglas McNair

 

Puerto Rican Health Beliefs and Practices: Exploring the Boundaries between Ethnomedicine and Biomedicine

Lee M. Pachter

 

Where Is Will Roger When We Need Him Most? Toward a Traditional Morality in Biomedical Ethics

Tex Sample

 

 

Cultural Diversity, Vol. 17 (1), Spring 2001

 

 

Fadiman and Beyond: The Dangers of Extrapolation

Linda L. Barnes and Gary A. Plotnikoff

 

Case Study: What Amy Doesn't Know - Respect for Cultural Diversity or Bad Ethics?

Helen Emmott, Robert Lyman Potter and Rosemary Flanigan

 

Cultural Barriers to Compassionate Care - Patients' and Health Professionals' Perspectives

Alice H. Cornelison

 

Outcomes of Written Living Wills in Japan - A Survey of he Deceased Ones' Families

YuichiroMasuda, Michael D. Fetters, Hiroshi Shimokata, Emiko Muto, Nanaka Mogi, Akihisa Iguchi and Kazumasa Uemura

 

Addressing Cultural Incongruities of Advance Directives

Dula Pacquiao

 

Reader's Forum: Riddle Me This: The Interplay Between the Social and Biology Constructs of Race

 

Cultural Assessment in Bioethical Advocacy - Toward Cultural Competency in Bioethical Practice

Ramon Valle

 

 

Cultural Diversity: Trusting Our Differences, Vol. 17 (3/4), 2001

 

Viewpoint: Their Story, My Story, Our Story

Vicky Burnett

 

Learning from Different Cultures - A Cultural Diversity Project in End-of-Life Care

Myra Christopher and Helen Emmott

 

Putting a Face on Poverty - A Tale of Two Counties

Sharon Lee

 

Ethics and Cultural Diversity - A Framework for Decision-Making

Dula F. Pacquiao

 

Vulnerability and Strength - Giving Voice to the Voiceless

Dennis Saleebey

 

Notes from the Field - An Adventure in Multiculturalism

M.C. Sullivan

 

Healthcare Narratives from Diverse Communities - A Self-Assessment Tool for Healthcare Providers

Midwest Bioethics Center Staff and Members of the Cultural Diversity Taskforce

 

The Cultural Divide between Medical Providers and Their Patients - Aligning Two World Views

Sara E. Tirrell

 

 

VULNERABLE POPULATION AND DISPARITIES ARTICLES

 

Midwest Medical Ethics

Vol. 6 (2 & 3), Spring/Summer 1990 -

Ethics and People with Developmental Disabilities

 

How Can Daniel Find a Girlfriend?

Linda L. Cooper

 

Euthanasia, "Final Medical Assistance," and the Right to Kill - A Review of "By Trust Betrayed: Patients, Physicians, and the License to Kill in the Third Reich"

Daryl P. Evans

 

Aunt Jewell and Sammie

Julie Heide

 

Simple Lives, Rich Gifts, Caring Communities

David O. Jenkins

 

Kaleidoscope: 10 Years

Mary Johnson

 

In Search of Common Ground

Paul H. Levy

 

Thank You, Helen Keller

Carter Martin

 

Ethical and Legal Issues in the Medical Care of Retarded Persons

Philip R. Reilly

 

Coming of Age in the 1990s: People with Down Syndrome

Donna M. Rosenthal

 

The Right to Die or the Right to Community Support?

Maggie Shreve and June Isaacson Kailes

 

Disabled Life is Worthwhile Life - A Review of Past Due: A Story of Disability, Pregnancy and Birth by Anne Finger

Irene R. Walsh

 

 

Bioethics Forum

Vulnerable Populations, Vol. 15 (2), Summer 1999

 

 

Addressing the Health Needs of the Underserved

Ellen Beck

 

Case Study: What Should We Do?

Rosemary Flanigan

 

Viewpoint: Societal Effects of Overlooking Children - Our Most Vulnerable Population

Linda Johnson

 

Treating Immigrant Populations - Cultural Competence in Health Care

Alice Kitchen

 

Beyond Justice

Robert D. Orr

 

Viewpoint: Prisoners as Vulnerable Persons

Robert Lyman Potter

 

Project BRIDGE - People with Disabilities Participate in Their Health Care Decisions

Don F. Reynolds

 

Autonomy and Competency - Self-Determination in the Lives of Adults with Developmental Disabilities

Tanya Whitehead

 

 

Reflections on Vulnerability and the Bioethics Movement, Vol. 16 (2), 2000

 

Case Study: Patient Vulnerability from a Systems Failure to Protect

Linda Johnson and Robert L. Potter

 

Listening to Stories - A Poet Speaks to Physicians

Stephen Dunn

 

Vulnerabiity and the Bioethics Movement

Rosemary Flanigan

 

Suffering, Cure and Palliation - Bioethics in an Era of Diverse Idioms

Douglas McNair

 

The Vulneribilty of the Sick

David C. Thomasma

 

 

Center for Practical Bioethics

 

Disparities in Health and Healthcare , Vol. 1 (4), Vol. 2 (1) Fall/Winter 2005/06

 

Disparities in Population Health - An Overview of Empirical and Ethical Issues

Erika Blacksher

 

Specialty Healthcare Access

Tarris Rosell

 

African American Disparities

Stacey Daniels-Young

 

Before the Revolution

Steve Roling

 

Idealism, Impotence and Justice

Jack Coulehan

 

Case Study: It's Too Much - First My Daughter, and Now This

Sharon Lee and Rosemary Flanigan

  

 

State Initiatives in End-of-Life Care

  

Policies to Address Disparities in End-of-Life Care, Issue 24

 

Approaches for Patients from Marginalized Groups, Issue 12

 

 

 

BIOETHICS CHANNEL

 

Conflicting View about the Review Process for Ashley X

In 2007, a developmentally disabled 7-year old girl underwent procedures in a Seattle hospital to stop normal growth. The Ashley X case created headlines and raised a host of ethical questions. Those issues are revisited in the January 2010 issue of The American Journal of Bioethics. Here, two bioethicists, one who supported the process of review followed by the ethics committee and the other who did not, discuss why such procedures should or should not require a court order. The bioethicists are Dr. Norman Fost, Professor of Pediatrics and Bioethics, University of Wisconsin-Madison, and Dr. John Lantos, Director of Children's Mercy Hospital Bioethics Center in Kansas City, and past John B. Francis Chair at the Center. (January 22, 2010, Norman Fost)

 

Cultural Fault Lines in Healthcare

Cultural fault lines exist in healthcare with clashing moral traditions, principles, values and beliefs, according to Michael Brannigan, PhD, the Pfaff Endowed Chair in Ethics and Moral Values at the College of St. Rose in Albany, New York. Dr. Brannigan examines how healthcare institutions have responded to these cultural fault lines. His most recent book is entitle "Cultural Fault Lines in Healthcare: Reflections on Cultural Competency." May 3, 2012

 

Pros and Cons of using Organs Donated by Living or Executed Prisoners

Arthur Caplan, PhD, Director of the Center for Bioethics at the University of Pennsylvania, discusses an October 2011 article in the American Journal of Bioethics, which considers the pros and cons of using organs donated by living or executed prisoners. (October 11, 2011)

 

Implementations of New HIV Testing

An article in the April 2011 issue of the American Journal of Bioethics addresses ethical concerns over new recommendations for HIV testing, which appear to focus on implementation rather than the recommendations themselves, as discussed here with article co-author Teresa Celada of Wheaton College. (April 15, 2011)

 

 When Public Health Officials Collaborated in Crimes Against Humanity

Susan Bachrach, Curator US Holocaust Memorial Museum, and Jean Zeldin, Executive Director, Midwest Center for Holocaust Education, discuss the long path to genocide, including ideas about eugenics, which created an environment in which physicians and public health officials collaborated in crimes against humanity.

 

Hospice in American Prisons

 

Transforming Bioethics: Sensitivity to Cultural Differences

Standard bioethics is ripe for transformation. Richard Payne, MD, John B. Francis Chair at the Center and Esther Colliflower Professor of Medicine and Divinity at Duke Dvinity School, Duke University, provides a preview of his Flanigan Lecture, where he argues that cardinal principles of ethics (autonomy, non-malfeasance, benificense and justice) may over-emphasize autonomy to the detriment of underserved people from different cultural perspectives. (July 14, 2011)

 

Spirituality and Race in End of Life Care 

What does spirituality and race have to do with end of life care? Terry Rosell, Rosemary Flanigan Chair, and Richard Payne, MD, professor at Duke University and John B. Francis Chair at the Center, discuss disparities in healthcare in African American populations and how they impact care at the end of life prior to presenting a program on the same subject to African American faith leaders in Topeka on July 27, 2011.

 

Respecting the Disabled at the End of Life

Where do we stand when it comes to people with disabilities and end of life issues? Paul Tobin, president and CEO of the United Spinal Association, will address this question in Kansas City at the Legacy of Nancy Cruzan Conference November 12 and 13, 2010. (October 20, 2010)

 

The Bioethics of Gay Men Donating Blood

 

Matching Physicians with Patients in Need

In 2005, it was an idea. Two years later, it became a reality. Now It’s the Northland Care/MetroCARE program, a specialty care network for the poor and uninsured in the Kansas City area. Jill Watson of the Metropolitan Medical Society and Dr.Tyler Brundige talk about the program. (April 24, 2009)

 

Rosemary Flanigan Lecture Presents "The Ethics of Spectacle" with Karla Holloway

In this short interview, Duke University Professor Karla Holloway, PhD, explored how medical information - typically seen as intimate and private - is forced into the public sphere. The resulting social dramas become spectacles that play out on the bodies of minorities and women. Dr. Holloway called for a "cultural bioethics" that attends to race, gender, the right to privacy and justice. The lecture was on August 13, 2014, Disparities & Vulnerable Populations, Karla Holloway, PHd.

 

Healthcare and Social Justice from the Heartland to Haiti 

Helen Emmott, a nurse ethicist, explains why healthcare and social justice challenges exist not just in Haiti but in the heartland of America as well.  (January 14, 2011)

 

The Ethics of Care for Undocumented Immigrants

Disparities & Vulnerable Populations

 

Lee Woodruff: ReMind Us about Returning Vets

Lee and Bob Woodruff are recipients of the 2012 Vision to Action Award, the highest honor conferred by the Center for Practical Bioethics. Ms. Woodruff accepted the award during the Center’s Annual Dinner on April 19, 2012. In her acceptance remarks, she talks about their work with ReMind, an organization that tends to the needs of injured military veterans returning to the US from conflicts all over the world. (April 23, 2012)

 

Chronic Pain and Health Disparities

September Williams, MD, discusses chronic pain, health disparities and why we need to do something abou it. Dr. Williams is an internal medicine physician at the San Francisco Public Health Department’s Laguna Honda Hospital and Rehabilitation Center. She is also a clinical ethicist and a film maker. (March 9, 2011, September Williams, MD)

 

 

LECTURES

  

Bioethics and the Underserved: Culture, Values and Justice 

There is much in contemporary health care that is ripe for transformation, including bioethics. Standard bioethics codified in the ethical principles of "autonomy, beneficence, non-malfeasance, and justice" needs to be challenged as too limiting a framework for analyzing and responding to ethical and moral issues raised by the problems of inadequate health care for many.

Standard bioethics codified in the ethical principles of "autonomy, beneficence, non-malfeasance, and justice" needs to be challenged as too limiting a framework for analyzing and responding to ethical and moral issues raised by the problems of inadequate health care for many.In this lecture, Dr. Richard Payne, M.D., discusses how medical professionals might consider a wider perspective of bioethics that encompasses cultural narratives and perspectives that should enhance richer and more robust dimensions of ethical decision making.

In this July 26, 2011, lecture, Dr. Richard Payne, M.D., discusses how medical professionals might consider a wider perspective of bioethics that encompasses cultural narratives and perspectives that should enhance richer and more robust dimensions of ethical decision making.