The Institute of Medicine reports more than 100 million Americans suffer from chronic pain at a cost of up to $635 billion each year in medical treatment and lost productivity. In this September 2012 interview, Maggie, diagnosed at 13 after years of pain with Ehlers-Danlos Syndrome, a genetic connective tissue disorder, discusses the challenges she faces and strategies she uses in navigating the medical system and obtaining relief. (Nov. 14, 2012)


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pain, EhlersDanlos syndrome, genetic diseases, EhlersDanlos, connective tissue disorder

Center for Practical Bioethics

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