Advance Care Planning
Advance Care Planning programs build on the Center for Practical Bioethics’ legacy work
in end-of-life care, with emphasis on increasing participation by underserved communities.
Advance Care Planning is a two-part process. The first part is making your values and healthcare wishes known so you receive the kind of care and treatment you want. The second part is to ensure that those who speak for you are prepared to express your wishes. Goals of care discussions are vital to this process and emergency responders are sensitive to these goals, especially for patients living with advanced illness.
Engaging in Advance Care Planning discussions with loved ones is vital to the health and well-being of each of us. Moreover, as we focus on understanding what’s important in sharing our values and exploring treatment options, we must also address the impact of inequities in healthcare services due to cultural issues, structural racism, and equal access to care. The Center’s national leadership in shared decision making, especially at the end of life for those who are underserved, can be called on in a time of need.
Caring Conversations Workbooks
The Center’s Caring Conversations workbook guides you through the discussion process, explaining what to consider and how to talk with your agent, loved ones and providers about what’s most important to you. You need to have confidence that your wishes are made known and understood by others, so you can trust that your values and preferences will be honored.
- Caring Conversations Workbooks – The first edition of the workbook in 2001 set the stage for millions distributed over the next two decades. In addition to guiding individuals and families through the advance care planning process, the workbook includes forms for documenting who can speak for you and what treatment preferences you may have. You can purchase a print copy or download print and electronic versions, and providers can purchase them in bulk.
- Caring Conversations Workshops – Contact the Center to find out how we can craft a virtual or in-person presentation for your group.
– Ask Us Why We Bring a Stuffed Elephant to Every Presentation –
Employee Benefit Programs
Employers have a vested interest in the well-being of employees and their families. For more than 10 years, the Center has offered companies the opportunity to provide Advance Care Planning education and 24/7 availability of health system “navigation” services. This family “wellness” benefit includes support and advocacy when an employee or a loved one needs help charting a course forward due to serious illness or health crisis. Ask about how our corporate partners, Hallmark and Evergy, make this service available to their employees’ families.
Accelerated Advance Care Planning in Long-Term Care
During the pandemic, the Center pivoted to develop a series of training programs for long-term care providers specifically to address the need for accelerating care planning discussions for families and loved ones. These training programs continue to be available for professional associations, long-term care providers, and organizations seeking guidance on how to respond to crisis situations quickly and compassionately, where families may be separated and difficult care planning discussions must be managed remotely.
Transportable Physician Orders for Patient Preferences (TPOPP/POLST)
TPOPP is the Kansas/Missouri version of POLST, a voluntary program seeking to align treatment plans with the goals and values of seriously ill patients living with life-limiting illness across care settings. The Kansas/Missouri POLST initiative, sponsored by the Center, is the country’s only bi-state initiative.
The Center provides tools, training, resources and forms for clinicians and medical providers at various stages in their development, ensuring coordination of providers across settings from residential care to first responders to hospital and rehabilitation care. More than 170 locations across the two-state region participate in the initiative.